Friday, December 16, 2011
Take A Second To End Huntington's Disease
Above you will see a picture of a friend of mine. Her name is Faith Degenhardt. I met Faith via her brother Lee who is a close friend, a man who used to do sound for my band Jabooda in the early years of our live performances.
Faith suffers from Huntington's Disease and her ability to speak and walk varies due to the complications from this disease.
Years ago when when the band had just started out I often remember Faith acompanying Lee to our performances. She was always very quiet, a very gentle soul and kind person and at the time there was no inclination she would someday have serious issues with mobility and speaking.
This disease has robbed Faith of simple activities that many of us take for granted. Her ability to go for a walk, play sports, dance and speak is challenged by this disease.
Currently she is bound to a wheel chair much of the time but does have days where can she walk short distances.
I can't imagine how frustrating it must be to deal with this on a daily basis. Not only is this clearly a hard reality to face for a young woman but even speaking about the issue itself is challenge for her on some days due to how the disease makes talking a challenge.
I am telling her story here today because I wish to ask you a simple favor.
Please go to this website and click "vote" by doing so you may very well help to fund the study for a cure to this debilitating disease and provide much needed medication to thousands of people like Faith.
It will literally take you one second and cost you no money.
I thank you for your time in advance.